CHAOSTOCOSMOS

Thursday, 12 May 2016

Why the separation of ME from CFS is long overdue

Myalgic Encephalomyelitis, a neurological disease with multi-system dysfunction is continuing to disappear from view, lost in a fatigue focus that does not clinically represent the reality of this severely disabling chronic disease. There should, you would think, be no compromise on identifying and separating Myalgic Encephalomyelitis from other conditions and recognising the need for a full medical service with a biomedical pathway, for people with Myalgic Encephalomyelitis (ME). This is sadly not the case and that has profound implications for those people who have ME especially the most severely affected, who are so isolated as to be almost invisible to health services, social services and society generally, too ill to engage with them.

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Why the separation of ME from CFS is long overdue

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