CHAOSTOCOSMOS

Wednesday, 13 April 2016

Always use the correct term to refer to "ME"

Always use the correct term to refer to "ME", if you do not, then you are actively perpetuating a seriously dangerous state of confusion, denial, oppression, mistreatment and medical neglect leading to death. Myalgic Encephalomyeltis/ Post Viral fatigue Syndrome (ME/PVFS) is formally classified as a neurological disorder in the International Classification of Diseases (ICD10:G 93.3; WHO 1992). “CFS”, according to the WHO is only acknowledged as a colloquial, not an absolute term to represent ME. The ICD separately classifies fatigue syndromes as a behavioural (psychiatric) disorder (ICD 10:F 48). What the PACE Trial refers to “CFS/ME” is a condition of “medically unexplained” fatigue that is perpetuated by inappropriate illness beliefs, pervasive inactivity, current membership of a self-help group and being in receipt of disability benefits (PACE Trial Identifier, section 3.9). “ME/CFS” is an umbrella term, subject to many different interpretations, incorporating a wide range of meaning and poorly identified conditions.

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Always use the correct term to refer to "ME"
Pamela is a former accountant, recovering journalist and international cat herder, disabled and chronically sick with Myalgic Encephalomyelitis, Fibromyalgia and Cervical spondylosis, fluent in three languages; English, Spanish and Rubbish. Mostly writes in the latter. She likes Genealogy, Model Railways and Cats.

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