Wednesday, 2 December 2015

HIV/AIDS drugs interfere with brain's 'Insulation'

In one doctor's, Theodore Henderson, MD., PhD, experience, over 85% of patients with SEID (diagnosed by Fukuda criteria) respond to antiviral therapy, these data are also consistent with prior studies of antiviral treatment of SEID and there are other studies and trials ongoing.

Antiviral therapy may therefore give hope to the general community of ME/CFS/Fibromyalgia patients that this may offer an effective treatment.

Unless you're in the UK, of course, where the NICE Guidelines insist that Antiviral agents should not be used for the treatment of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME).

It never ceases to amaze (and anger) me that when these "guidelines" provide a GP with a "getout", such as in this case, they suddenly become rules set in stone that cannot be disobeyed. On the other hand, when I attempted to get assistance with weightloss - and clearly came within the parameters recommended by the "guidelines" for treatment - they reverted to being mere guidelines and a reason was repeatedly found for witholding the help. In other words, the guideline to not use antiviral agents will be adhered to here like a prohibition issued under pain of death.

All that notwithstanding, I still believe that a) antivirals may help with my Epstein Barr onset ME (also maybe not after 42 years, but still worth a try), however, we should not be too eager to see them as an absolutely certain magic bullet and this may be one of the reasons why:

Antiretroviral therapies, or ART, have enabled people with HIV and AIDS to live much longer lives, transforming what was considered a death sentence into a chronic condition. Yet concerns for these patients remain. Up to half of people with HIV on these drug regimens have some sort of cognitive impairment, such as memory loss or problems with executive functioning, despite the virus being almost undetectable in their bodies.

HIV/AIDS drugs interfere with brain's 'Insulation' -- ScienceDaily

(Systemic exertion intolerance disease (SEID) is another name for what most of us still call Myalgic Encephalomyelitis (M.E.)

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