Tuesday, 28 July 2015

The Real Reason Chronic Fatigue Syndrome and Fibromyalgia Get Lousy Funding

The underpowered name, the vague definition, the broken funding mechanism, the lack of FDA approved drugs, the inconsistent study results, the unfortunate leaders, the lack of major researchers…they’ve all contributed to the funding problems in ME/CFS, but I assert they are all symptoms of the problem, not the cause. I assert that, absent fixing our crucial problem, that even solid advocates at top positions in the federal government would have had trouble getting us far.

Why do I think that? For one, because migraine has a good name, it’s centered in the right Institute, it has several drugs approved for it, it’s well-defined, pathophysiological disorder that has good researchers associated with it and it still gets lousy funding.

Something deeper is going on – the fixing of which is critical – and which would clear the way for abundant funding. Not fixing this issue, on the other hand, will guarantee that, whatever increases in funding occur, ME/CFS will probably keep on in its petty funding pace. It will always, like migraine, have a low funding ceiling relative to other major disorders.

The Real Reason Chronic Fatigue Syndrome and Fibromyalgia Get Lousy Funding
Pamela is a former accountant, recovering journalist and international cat herder, disabled and chronically sick with Myalgic Encephalomyelitis, Fibromyalgia and Cervical spondylosis, fluent in three languages; English, Spanish and Rubbish. Mostly writes in the latter. She likes Genealogy, Model Railways and Cats.

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