CHAOSTOCOSMOS

Friday, 24 October 2014

Palliative care for ME?


Consider this, “End of life care: If you are approaching the end of life, you have a right to good palliative care – to control pain and other symptoms – as well as psychological, social and spiritual support.”

We certainly do not get that level of support as ME patients, in fact, bugger it, we mostly don't get any of that and I think that’s the least we should get!

Yet, Mark Loveless, an infectious disease specialist and head of the AIDS and M.E. Clinic at Oregon Health Sciences University, found that M.E. patients whom he saw had far lower scores on the Karnofsky performance scale than his HIV patients even in the last week of their life. He testified that a M.E. patient, ‘feels effectively the same every day as an AIDS patient feels two weeks before death’” [Source]

Which got me thinking ... ME patients ought to be demanding a right to palliative care too.

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