CHAOSTOCOSMOS

Friday, 8 August 2014

Severe ME Awareness Day 8th August 2014 Stop the ME Cover up!

smedaySevere ME Day is upon us again. This is a relatively new event following it’s launch last year under the banner of Severe ME Understanding and Remembrance Day 2013 which focused on those who had sadly lost their battle to this dreadful disease.

Many people received this day of remembering the severely affected sufferer with open arms and some other ME organisations advertised it by highlighting it within their own publications and websites to help raise awareness.
This year we want to highlight the “ME Cover Up”.

We want to feature this “Cover Up” within our Severe ME Day section of the website, and have asked members, if possible, to send in photos of themselves covered by a sheet and holding up an awareness slogan.

Through this, we want to show that many sufferers feel they are invisible to the outside world and feel that ME is not taken seriously.

We also want to make the point that sufferers really want and need so desperately to be “seen, heard and recognised” and to show that we refuse to be ignored or to be invisible to the world. We may not be able to present ourselves to the world because of severe ill health but we want to be listened to and heard by the appropriate authorities and to receive services, and appropriate help. We would also like to see more biomedical research undertaken, and cognisance taken of the body of biomedical research that exists at present.

We want the medical profession and general public to understand the seriousness of the illness and remember that underneath the sheet there is still a human being.

The 25% M.E. Group Website

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