CHAOSTOCOSMOS

Thursday, 29 May 2014

We Should Join Forces To End 'Shameless' Government Attacks Against Disabled People, Say TUC

The Trade Union Congress (TUC) is urging unions and disability organisations to ‘come together’ and join forces to combat “shameless” government attacks against disabled people and welfare cuts. Speaking at an event at Congress House later today (29 May 2014), TUC Assistant General Secretary Paul Nowak is expected to say: “The past four years have been tough for disabled people in Britain. Cuts have devastated the NHS, social care and mental health services. Welfare reforms have shattered incomes and lifelines, and shameless propaganda about scroungers and spongers has fuelled prejudice, discrimination and hate.

We Should Join Forces To End 'Shameless' Government Attacks Against Disabled People, Say TUC

Basal Ganglia Problem Linked to Chronic Fatigue Syndrome

New research links dysfunction in the basal ganglia (a region of the brain) to physical and mental fatigue in chronic fatigue syndrome (ME/CFS). Researchers looked into this region because of its connection with fatigue in neurological disorders, including Parkinson's and Huntington's diseases. It's also linked to function of the neurotransmitter dopamine, which is believed to be dysregulated in
ME/CFS.
Basal Ganglia Problem Linked to Chronic Fatigue Syndrome
Brain imaging reveals clues about chronic fatigue syndrome

Sunday, 18 May 2014

What We Learned This Week (weekly)

Posted from Diigo. The rest of my favorite links are here.

Friday, 16 May 2014

Read the facts, spread the word | M.E. Time to deliver

Produced following a survey of more than 2,000 people in 2014, our M.E. Time to Deliver report was published on M.E. Awareness Day 2014 (Monday 12 May). It reveals the daily challenges faced by those affected by M.E./CFS in the UK

Read the facts, spread the word | M.E. Time to delive

Wednesday, 14 May 2014

Fibromyalgia: New Fad Diagnosis? Think Again!

We've all heard it from the skeptics: "That's one of those new
diseases made up by drug companies!" Or, within our own community,
sometimes you'll hear, "When are they going to start researching this?"



The truth is, scientists have been studying fibromyalgia for centuries. Names
and theories have come and gone, but through it all, a portion of the
research community has recognized it and worked to figure out what is
going on in our bodies.



Want to see how it all started, and how we got to where we are now? You can, right here:



The next time someone says fibromyalgia is a new fad diagnosis, you'll have a few things to tell them!



Fibromyalgia: New Fad Diagnosis? Think Again!

Sanctions: How To Avoid Them And How To Sue The DWP For Threatening You

Sanctions against claimants have reached record levels and it is very clear that they are being imposed for the tiniest deviation from agreements or even for no good reason whatsoever. They are now affecting not just JSA claimants but also ESA claimants – particularly those forced onto the work programme. In response, Benefits and Work have published free guidance on how to reduce the chances of being sanctioned. They also explain how to sue the DWP and work programme providers if you are unfairly threatened with a sanction.
Newsletter 14 May 2014

 

Monday, 12 May 2014

ME and CFS Medical Abnormalities

More than 500 peer-reviewed articles have been published demonstrating a
wide variety of physiological abnormalities in patients with "Chronic
Fatigue Syndrome" (a condition that encompasses patients with Myalgic
Encephalomyelitis). 



Unfortunately, most of these abnormalities have never been covered by
the mainstream news media, meaning that most people (including
non-specialist physicians) have no idea that they have been shown to
exist.

ME and CFS Medical Abnormalities

ME/CFS: In Free Fall Through the Looking Glass

Here’s the point though. What happened was so far beyond being tired,
or lazy, or unmotivated, or living with a little pain or … or anything
we’d consider normal.

I was 36 years old, I’d been this person for over three decades, and I
know what is normal and what is way the heck from the outer limits. This
is true for all of us, and that’s why I’m writing this.

We are not a little run down. We are not a little weary. We are not
stressed or depressed. We are not this way because we get anxious
sometimes.

We know our bodies. We know ourselves. And we know when our lives have
been turned inside out as if some alien had come to reside within us
against our wills.

ME/CFS: In Free Fall Through the Looking Glass

May 12, International ME Awareness Day



Sunday, 11 May 2014

Stigma of chronic fatigue illness adds to suffering

A new survey shows people with debilitating Chronic Fatigue Syndrome, or ME (Myalgic Encephalopathy) feel misunderstood and stigmatised, and more public education about the condition is needed. Dr Don Baken, a clinical psychologist at the School of Psychology at Massey University’s Manawat├╝ campus who has researched the issue, says the impact on sufferers of Myalgic Encephalopathy/Chronic Fatigue Syndrome (ME/CFS) can be devastating, and feeling stigmatised just adds to this. 

Stigma of chronic fatigue illness adds to suffering

What We Learned This Week (weekly)

Posted from Diigo. The rest of my favorite links are here.

Friday, 9 May 2014

Spain pensioners are in the money

In Spain,
like many countries, there are different types of pensions: retirement,
permanent disability, widowhood, orphanhood and family.
For the whole of
Spain, the average pension is 996.23 euros a month,
while the permanent disability averaged a monthly sum of 914.35 euros. The near-1,000-euro average pension is seen by many European states as over-generous, but Spain has a rich history of looking after its citizens. (Unlike the UK.)





Spain pensioners are in the money

Musical training can increase blood flow in the brain

Brief musical training can increase the blood flow in the left
hemisphere of our brain. This suggests that the areas responsible for
music and language share common brain pathways.

Musical training can increase blood flow in the brain

Fibromyalgia & Nerve Pain: Paresthesias

It might be an odd numb spot on your back, a hand that gets tingly, or a
foot that burns so bad you can't bear to take a step. Those are all
nerve sensations called paresthesias, which can also make you itch or
give you a crawling sensation. Paresthesia is common in those of us with
fibromyalgia, and it's also associated with peripheral neuropathy,
chemotherapy drugs, multiple sclerosis and migraine.

Fibromyalgia & Nerve Pain: Paresthesias

Fibromyalgia Pain: Allodynia

... allodynia is "pain from stimulus that usually doesn't
cause pain." Examples: flashing lights, repetitive sounds, visual
"chaos," confusion. How do those cause pain? I don't know, but trust me:
they do. And I'm not talking headaches, like you might expect from
light and sound. For me, these things cause pain to rip through my
abdomen. I know, it's weird.

Fibromyalgia Pain: Allodynia

Wednesday, 7 May 2014

The Blood (Volume) Will Out: Is Ischemia A Key in Both POTS and Chronic Fatigue Syndrome?

In this blog we cover several new studies on POTS while investigating the role brain-blood flows and low blood volume play in both disorders and conclude significant overlaps may exists between the two disorders. Reduced blood flows to the brain sound pretty dire and the effects can be significant. Let’s see what research tells about blood flows to the brain in ME/CFS and POTS.

The Blood (Volume) Will Out: Is Ischemia A Key in Both POTS and Chronic Fatigue Syndrome?

Enhancing Blood Volume in Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia

The low blood volume finding in
chronic fatigue syndrome has been consistently replicated; there is no
doubt that low blood volume 
is common in
this disorder. Low blood volume can cause, among other things, reduced
blood flows to the brain (cognitive difficulties), problems standing
(orthostatic intolerance), increased heart rates and reduced heart
functioning. While not the entire answer to chronic fatigue syndrome, increasing blood volume can be quite helpful.


Enhancing Blood Volume in Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia

Fibromyalgia Pain Type: Hyperalgesia

Hyperalgesia is the medical term for pain amplification in FMS. Our
brains appear to take normal pain signals and "turn up the volume,"
making them more severe than they would normally be. That appears to
happen through a complex process involving high levels of brain activity
in the pain centers, not enough serotonin, and too much glutamate.



The important thing to remember about hyperalgesia is that it doesn't directly cause pain, it makes existing pain worse. If you have arthritis, myofascial pain syndrome,
or other sources of chronic pain, it's important to treat those
conditions aggressively. That gives your brain less to amplify, and can
often quiet down your other symptoms as well.

Fibromyalgia Pain Type: Hyperalgesia

Tuesday, 6 May 2014

Serotonin & MECFS: It’s bacterial, Jim, but not as we know it.

Wouldn’t it be odd if this fact became the proof that ME is caused
by bacterial infections – it suggests viable medical evidence to say why
– and that this is the reason for our mood problems and cognitive
problems (bacteria has increased or decreased serotonin) and not the
fact that ME CFS is somehow a psychiatric illness like clinical
depression which has a different cause? 

Serotonin & MECFS: It’s bacterial, Jim, but not as we know it

Revealed: How parts of Britain are now poorer than POLAND with families in Wales and Cornwall among Europe’s worst off

Parts of Britain are now poorer than Poland, Lithuania and Hungary, official figures reveal.


People in the Welsh Valleys and Cornwall – Britain’s two poorest areas – scrape by on less than £14,300 a year on average.


Because Britain is so expensive, this leaves families in these areas worse off than those vast swathes of Eastern Europe, according to an EU study.

Revealed: How parts of Britain are now poorer than POLAND with families in Wales and Cornwall among Europe’s worst off | WebInvestigatorKK

Monday, 5 May 2014

Stop Telling Me How To Eat To Cure My Incurable Disease (And Other Things People Without Medical Degrees Say To The Chronically Ill)



The
experts at IACFS/ME have written in their primer for doctors that there
is no dietary cure/treatment for CFS.  Obviously, if you're
lactose-intolerant quite aside from your CFS, you'd avoid milk, but
that's not because you have CFS. So, if
you're going to tell me that you have this magic new diet that will
cure my CFS, just keep it to yourself. The best I can do is to eat a
normal, balanced, nutritious diet.  Vegetarians and vegans get CFS,
too, so if their diet didn't keep them healthy in the first place, why
would it cure me?


Stop Telling Me How To Eat To Cure My Incurable Disease (And Other Things People Without Medical Degrees Say To The Chronically Ill)

Why Are Doctors Skeptical & Unhelpful about Chronic Fatigue Syndrome?

My neurologist’s understanding of the illness closely reflected that of
most doctors, who typically believe two things about CFS: that it’s
probably psychosomatic, and that there’s nothing doctors can do for
these patients. Experts have known otherwise for decades. The result is
that while patients don’t get the help they need, they often do get a
helping of scorn.

Why Are Doctors Skeptical & Unhelpful about Chronic Fatigue Syndrome?

Benefit Sanctions 'Damaging' Waste Of Time, Say Jobcentre Staff

The controversial practice of docking benefit payments for
unemployed people who fail to adhere to strict new requirements imposed
upon them is a ‘damaging’ waste of time, a survey by the Public and
Commercial Services Union (PCS) suggests.






... 70% of jobcentre advisers who responded to the PCS survey
said that benefit sanctions ‘had no positive impact’ in influencing the
behaviour of jobseeker’s.

Benefit Sanctions 'Damaging' Waste Of Time, Say Jobcentre Staff



Just a thought ... maybe sanctions have no impact coz people generally aren't being lazy, there just aren't any jobs out there for them. 

Surviving Life On Benefits

Benefits and Work had well over 500 replies to their question about what advice you would give to people new to claiming benefits.


They cover issues as varied as where to shop, how to cook, what
websites to use, where to get advice, how to cope with neighbours and
the media’s hate campaign.


And the picture your suggestions paint is a very different one from
the ugly distortions of the tabloids. Not a single mention of food
banks. No suggestions about ways to afford flat screen TVs or cigarettes
or alcohol.


Instead, your tips have an almost wartime spirit of defiance – a
mixture of dig for victory and make-do and mend. Shining through them is
a determination to survive without bitterness and without being ground
down by adversity.


Above all, they demonstrate the reality of life on benefits that
politicians, bankers and the media are desperate to keep hidden in order
to make claimants the scapegoats for their own failings.

Surviving Life On Benefit

Epstein Barr Virus, Autoimmunity and Chronic Fatigue Syndrome: Are They All Connected?

... a fascinating hypothesis proposing that poorly controlled EBV infections are at the heart of all autoimmunity. The kicker for ME/CFS is that same immune hole believed to allow EBV to do it’s thing in autoimmune diseases may very well be present in ME/CFS.

Epstein Barr Virus, Autoimmunity and Chronic Fatigue Syndrome: Are They All Connected?

Food banks - a radical plan

The growth of food banks reflects a simple truth: the government does not care about hungry families, writes Rupert Read. To tackle hunger, work must pay a living wage, social security must do its job, and communities must rebuild local food networks.

Food banks - a radical plan

Sunday, 4 May 2014

What We Learned This Week (weekly)

Posted from Diigo. The rest of my favorite links are here.

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