Chaos to Cosmos: The Strange Case of NIH and an Elusive Disease

Monday, 3 March 2014

The Strange Case of NIH and an Elusive Disease

Physicians who treat ME/CFS have told me that they would rather have cancer than this disease. One epidemiologist said, "With cancer, you are cured or you die. ME/CFS just goes on and on. You live the life of a zombie."

The Strange Case of NIH and an Elusive Disease By Llewellyn King

Pamela is a former accountant, recovering journalist and international cat herder, disabled and chronically sick with Myalgic Encephalomyelitis, Fibromyalgia and Cervical spondylosis, fluent in three languages; English, Spanish and Rubbish. Mostly writes in the latter. She likes Genealogy, Model Railways and Cats.

No comments:

Post a Comment

About

Chaos to Cosmos signifies a journey from one state to another, as in this study of chronic patients, From chaos to cosmos: The telling of a life story reconsidered:

"Chaos was experienced as a feeling of alienation from oneself, of being unable to determine one's own living conditions, and of being unable to handle stress situations by the same means as before. The path from chaos to cosmos was discovered by telling one's life story, which proved to be a creative process relating and integrating the present with the past, and providing an overview of one's life cycle."

This is my life, the story and anything else that interests me.