CHAOSTOCOSMOS

Friday, 31 August 2012

Paralympic ceremony performers join disabled activists and UK Uncut to target Atos HQ in London

Press realease: Paralympic ceremony performers join disabled activists and UK Uncut to target Atos HQ in London: Today Disabled People Against Cuts (DPAC) and UK Uncut will pile pressure on the controversial Paralympics sponsor Atos. Over 700 hundred protesters from across the UK are expected to descend on Atos’ headquarters in London to confront the company about their controversial Work Capability Assessments (WCA) which are destroying the lives of sick and disabled people.

Thursday, 30 August 2012

E-Patient Bloggers Are the Force Behind Awareness Campaign

Press Release: E-Patient Bloggers Are the Force Behind Awareness Campaign: When it comes to bloggers with passion, “e-patient bloggers” who share about their illness journeys, have changed how people find encouragement for living with their illness. A recent study found that 41% of e-patients have read someone else’s commentary or experience about health or medical issues on an online news group, website or blog, and 38% say it changed the way they cope with a chronic condition or manage pain.*

Disabled People Face A Tidal Wave Of Prejudice And Discrimination

Disabled People Face A Tidal Wave Of Prejudice And Discrimination: The rush of good feeling engendered by the success of the London Olympics and Team GB will doubtless carry the Paralympics in its slipstream. But the growing gap between the positive rhetoric underpinning the Paralympics and the day to day experience of thousands of disabled people in Britain raises big questions. Isn’t it a betrayal of every Olympic ideal?

Wednesday, 29 August 2012

15 Terms Everyone With Chronic Fatigue Syndrome Should Know

15 Terms Everyone With Chronic Fatigue Syndrome Should Know: Knowledge is power, and that goes double when you have a chronic illness few doctors know how to treat. When you have chronic fatigue syndrome, you have to do a lot of research in order to understand what's going on in your body and make decisions about treatment and management.

Iain Duncan Smith Prepares to cut Winter Fuel Payments by Temperature Testing

Iain Duncan Smith Prepares to cut Winter Fuel Payments by Temperature Testing � yesMinister the Public Affairs Think Tank: the Department for Work and Pensions has confirmed that the new temperature rule would also apply to pensioners in Britain, raising concerns that this would mean the elderly residing in the milder areas of the south of England could lose the benefit while those in colder parts of Europe continue to receive it.

Paralympic Sponsor Engulfed By Disability Tests Row

Paralympic Sponsor Engulfed By Disability Tests Row: More than 40 doctors and nurses working for major Paralympics sponsor Atos have been reported to medical regulators for professional misconduct amid growing concerns that disabled people are being wrongly deprived of benefits, The Independent can reveal.

Tuesday, 28 August 2012

Cameron’s hatred of the sick and disabled is increasingly lethal… � Ron's Rants…

Cameron’s hatred of the sick and disabled is increasingly lethal… � Ron's Rants…: Until the cancers of Cameron, IDS, and also Grayling (not to mention Maria Miller as Minister Against Disabled People), are extirpated, and IDS’s SpAds cast to the winds, shutting down his propaganda machine, nothing, absolutely NOTHING, is going to change.

15 Terms Everyone With Fibromyalgia Should Know

15 Terms Everyone With Fibromyalgia Should Know: When you have fibromyalgia , the more you learn about your illness the better you can take care of yourself. While medical terminology can be overwhelming and hard to understand (especially on foggy days!), it can really help to know a few key terms.

Cuts to Council Tax Benefit: It must be emphasised; even under this savage and corrupt government, there is no statutory compulsion for a local authority to cut council tax benefits. | ORGANIZED RAGE

Cuts to Council Tax Benefit: It must be emphasised; even under this savage and corrupt government, there is no statutory compulsion for a local authority to cut council tax benefits. | ORGANIZED RAGE: By this sadistic gesture, the government stands to save under � half a million: a tiny statistic at the top but a matter of life and death for a poor household.

Irritable Bowel Linked To Gut Bacteria, Definitively

Irritable Bowel Linked To Gut Bacteria, Definitively: A new study of Greek patients shows that overgrowth of bacteria in the gut is definitively linked to irritable bowel syndrome (IBS). It is the first to use the "gold standard" method of examining gut bacterial cultures to connect bacteria to the cause of a disease that affects some 30 million Americans. The researchers say their findings confirm antibiotics are a successful treatment for IBS.

Friday, 24 August 2012

Observed behaviour given more weight in Atos assessment than medical history or examination… | Atos Victims Group News

Observed behaviour given more weight in Atos assessment than medical history or examination… | Atos Victims Group News: Looking through the LIMA Computer programme the other day I found something I hadn’t noticed before, an instruction to Atos HCPs telling them that the LIMA computer programme favours OBSERVED behaviour over a claimants history or the examination, I find this rather disturbing.

Dysautonomia in Fibromyalgia & Chronic Fatigue Syndrome

Dysautonomia in Fibromyalgia & Chronic Fatigue Syndrome: Not everyone with fibromyalgia and chronic fatigue syndrome has problems with homeostasis, but most of us definitely do. That's because of abnormalities in our autonomic nervous system. A whole "family" of illnesses have this same problem, and they fall under the umbrella term "dysautonomia."

Tuesday, 21 August 2012

Repost: Benefit fraud - the levels are very low

Repost: Benefit fraud - the levels are very low | Blog | False Economy: Look at the figures for disability benefits and see how low the figures are. Remember them next time the BBC is running one of its 30 minute hate programmes, pushing the idea that every disabled person on benefits is a fraudster."

Monday, 20 August 2012

More On: What Those with Chronic Pain or Illness DON’T Want to Hear You Say

More On: What Those with Chronic Pain or Illness DON’T Want to Hear You Say | Psychology Today: a small sampling of comments that readers have had to listen to.

The ESA Saga: ESA - further insight into DWP's philosophy

The ESA Saga: ESA - further insight into DWP's philosophy: Firstly, there is the little known acronym “UPC” – Unreasonably Persistent Customer, which is a status attributed to anyone who in DWP’s view is making a nuisance of themselves. It is a totally unilateral designation which although it has certain consequences, you are not told directly that you have achieved this accolade. I only found out about mine by chance through an unrelated SAR (Subject Access Request under the Data Protection legislation).

Sunday, 19 August 2012

Man in a coma is "fit for work," loses disability benefits - Boing Boing

Man in a coma is "fit for work," loses disability benefits - Boing Boing: A post in a thread on rightsnet.co.uk claims that ATOS (a French private company that administers disability benefits assessments for the UK Department of Work and Pensions) has declared a man in a coma to be fit for work and cut off his benefits. This is part of a the stepped up campaign to stop "benefits cheats" by requiring complex paperwork from claimants.

Friday, 17 August 2012

The abolition of ‘Broken Britain’

The abolition of ‘Broken Britain’ | openDemocracy: What does this say about Cameron’s Conservatives? Fundamentally, ‘Broken Britain’ represents a regression, not the progressive ‘born-again’ model Cameron claims to embrace. The invocation of sickness as a stigma is the distinctively conservative element that screams of rank televangelical charlatanism; it is a trick to which Cameron’s recent Conservative predecessors did not stoop, but may be seen as a classic hallmark of cultish fundamentalism. It is used to justify government irresponsibility; in effect, it is the relinquishment of any belief in the role of government in society.

Media Should Start Standing Up For Sick & Disabled Benefit Claimants

Guest Post: Media Should Start Standing Up For Sick & Disabled Benefit Claimants: So when is someone in our media going to grow some ….. Courage, and stand up for the Sick and Disabled people so we can be heard and stop the general public being hoodwinked by this negative portrayal of the sick and disabled as ‘workshy scroungers’. There is no such think as genuine and non-genuine sick and disabled. These comparisons are dangerous and should never be used. There are simply people who need the very basis levels of support sickness and disability benefits provide.

Diary of a Benefit Scrounger: The DWP, the Law and Atos

Diary of a Benefit Scrounger: The DWP, the Law and Atos:
Crucially, the tribunals make their decisions based on law. They decide, legally, whether or not a claimant is fit for work based on precedent, existing case law and employment law. Much as the DWP might wish it were not so, the decisions overturned by the tribunal system were not just wrong, they were illegal. 

Speak Out! And Help Us Put An End To The Negative Portrayal Of Sick & Disabled In The Media

Speak Out! And Help Us Put An End To The Negative Portrayal Of Sick & Disabled In The Media: Disability Hate Crime has been on the increase in recent years and many people, including us, put much of the reason behind this to the way disabled people are being portrayed in the press and wider media. The press and wider media have a moral and social duty to all those who live in the UK including the sick and disabled to ensure that this does not increase further.

Fibromyalgia Facts - 10 Things You Should Know About Fibromyalgia

Fibromyalgia Facts - 10 Things You Should Know About Fibromyalgia: Fibromyalgia is a chronic arthritis-related syndrome. A syndrome is a collection of symptoms. If you have been diagnosed or have signs and symptoms pointing to fibromyalgia, there are 10 basic facts you should know about fibromyalgia.

Tuesday, 14 August 2012

Disability hate crime is at its highest level since records began

Disability hate crime is at its highest level since records began | News | guardian.co.uk: The number of recorded incidents of disability hate crime in England and Wales rose in 2011 to almost 2,000, its highest total since records began. In the same year there were just 523 convictions for the offence

Chris Grayling tries to cover-up report into Jubilee Stewards incident

Chris Grayling tries to cover-up report into Jubilee Stewards incident | Political Scrapbook: Chris Grayling plans to cover-up an official report into the notorious “Jubilee stewards” incident on the basis that it is “commercially confidential”. The episode unpaid workfare staff forced to sleep rough under London Bridge before assisting at the Diamond Jubilee celebrations.

BBC News - Fire in Spain's Canary Islands an 'ecological disaster'

BBC News - Fire in Spain's Canary Islands an 'ecological disaster': About 25% of the Garajonay nature reserve, a Unesco World Heritage site, has been destroyed by fire. The area measures about 750 hectares (1,853 acres).

The woodland is a unique ecosystem, believed to be millions of years old. Javier Gonzalez Ortiz, the Canary Islands' head of security and emergencies, described it as "an ecological disaster".

Should doctors treat lack of exercise as a medical condition? Expert says 'yes'

Should doctors treat lack of exercise as a medical condition? Expert says 'yes': Several chronic medical conditions are associated with poor capacity to exercise, including fibromyalgia, chronic fatigue syndrome and postural orthostatic tachycardia syndrome, better known as POTS, a syndrome marked by an excessive heart rate and flu-like symptoms when standing or a given level of exercise. Too often, medication rather than progressive exercise is prescribed, Dr. Joyner says.

In at least one of those cases, exercise would be damaging. 

Monday, 13 August 2012

Taking Care of Yourself With Fibromyalgia

Taking Care of Yourself With Fibromyalgia: Do you try to take care of yourself? Do you take your meds and/or supplements like you should, pace yourself, and do the things you know help ease your symptoms?

How well you do those things is called your self-efficacy. If you're consistent about doing the right things, you have good self-efficacy. If not, perhaps it's something you need to focus on.

Sunday, 12 August 2012

Coalition government will not survive until 2015 election, voters predict

Coalition government will not survive until 2015 election, voters predict | Politics | The Guardian: Only one voter in six believes the coalition will survive until the 2015 election, according to a Guardian/ICM poll that shows the proportion expecting a collapse within two years has nearly doubled in two weeks.

[Rubs hands together and hopes the poll is right.] 

Friday, 10 August 2012

Is Chronic Fatigue Syndrome All in My Head?

Is Chronic Fatigue Syndrome All in My Head?: In the face of decades of research, it's astounding that we still have to contend with this question. To see evidence that the answer is a resounding NO, read this: FAQ - Is Chronic Fatigue Syndrome All in My Head?

If someone asks you that question, tell them, "Absolutely not," show them that FAQ, and, above all, do not let their skepticism become your own. It's poison - shove it out of your mind. You know you're sick, you didn't want to live this way, you'd change it all if you could.

Diary of a Benefit Scrounger: Atos the Triumphant!!

Diary of a Benefit Scrounger: Atos the Triumphant!!: What do you do with a company failing 1.9 million sick and disabled people? Give them a few million more. In this Alice-in-Wonderland-Meets-the-Excorcist cameo that is this coalition's approach to government-by-private-company, yet another -Atos Healthcare - has been rewarded for abject failure.

Fibromyalgia & ADD are Related?? -- Really?

Fibromyalgia & ADD are Related?? -- Really? | Transform Your Chronic Life: ... the connection between AD/HD and fibromyalgia. The chapter on fibro provides an excellent explanation of how stress and fibromyalgia are interconnected; including explanations of how the limbic system and the Hypothalamic-Pituitary-Adrenal (HPA) axis work, how they’re affected by stress, and how that ties into fibromyalgia (dysfunction of the HPA axis is suspected to play a large part in fibromyalgia.)

Fibromyalgia Trial Shows Promise…For Chronic Fatigue Syndrome? Mast Cells and Ketiotifen in FM and ME/CFS

Fibromyalgia Trial Shows Promise…For Chronic Fatigue Syndrome? Mast Cells and Ketiotifen in FM and ME/CFS | Phoenix Rising: An intriguing Fibromyalgia treatment appears, in its preliminary stages, to be working. A powdered form of Ketiotifen (which is not available yet in the US) may be turning down the activity of important immune cells called mast cells that recent research suggests could be contributing to the pain and fatigue in fibromyalgia (FM) and perhaps even chronic fatigue syndrome (ME/CFS).

Thursday, 9 August 2012

How dare they call tax payers benefit cheats � UK Gazetteer

How dare they call tax payers benefit cheats � UK Gazetteer: It really is a joke when you find ministers, politicians, and ignorant right wing nuts call those who have worked hard and paid into the system not only their taxes but also premiums towards the National Insurance scheme in the country and then to be labelled a cheat. In as far as I understood it was a nationally run insurance that would guarantee myself and my family to have protection when unemployed or sick and provide for a pension when I am retired in addition as payments towards a number of other things.

Tuesday, 7 August 2012

It’s not the benefit fraudsters who are targeted in the media, it’s the disabled

It’s not the benefit fraudsters who are targeted in the media, it’s the disabled | | Independent Editor's choice Blogs: For a couple of years disabled people have been reporting increased levels of both verbal and physical abuse from members of the public. This has been confirmed this week in the results published by the charity Scope from a survey of 500 disabled people and their carers across the country. The research showed that 46% of those polled said that attitudes towards them had worsened over the past year.

Women With Vulvodynia At Much Higher Risk For Other Chronic Pain Conditions

Women With Vulvodynia At Much Higher Risk For Other Chronic Pain Conditions: New research now shows that women with this painful vaginal condition known as vulvodynia are two to three times more likely to also have one or more other chronic pain conditions, including irritable bowel syndrome, fibromyalgia (musculoskeletal pain) and interstitial cystitis (bladder pain).

Monday, 6 August 2012

Old Debate Sheds Further Light On The Right To Appeal Benefit Decisions

Old Debate Sheds Further Light On The Right To Appeal Benefit Decisions: The clause addresses a claimants right to request an appeal when they believe a decision made by the Department for Work and Pensions about benefit eligibility and entitlement to be wrong. Clause 99 makes a few changes to the appeal structure by making it compulsory that a claimant must first ask for a ‘reconsideration’ of their claim for benefit eligibility and entitlement before they can ask for an appeal, which may or may not include a hearing by a tribunal.

The Paralympics and the chronically sick and disabled, a press release.

The Paralympics and the chronically sick and disabled, a press release. � Ron's Rants…: People like me – and I am by no means unique – cannot be “incentivised” (for which read bullied and threatened), or “supported” – a term which includes slave labour – into work, because working is simply impossible, for ourselves or for an employer.

How the newspapers are reporting disability

How the newspapers are reporting disability � UK Gazetteer: These articles are impacting on people’s views and perceptions of disability related benefits. The focus groups all claimed that levels of fraud were much higher than they are in reality, with some suggesting that up to 70% of claimants were fraudulent. Participants justified these claims by reference to articles they had read in newspapers.

BBC News - Carbon monoxide's damaging role in heart rhythm found

BBC News - Carbon monoxide's damaging role in heart rhythm found: The way that even low levels of carbon monoxide can be fatal, by disrupting the heart's rhythm, has been unravelled by researchers in Leeds.

New Disability Test Will 'Cause Suicides' Say Disability Campaigners Disabled People Against Cuts (DPAC)

New Disability Test Will 'Cause Suicides' Say Disability Campaigners Disabled People Against Cuts (DPAC): Disabled People Against Cuts (DPAC) issued the stark warning after announcing a week of protest during the Paralympic Games against controversial outsourcing outfit and Games sponsor Atos, which has been handed the lion’s share of the contract.

Saturday, 4 August 2012

The worrying 35 per cent: how can we convince the country?

The worrying 35 per cent: how can we convince the country? | Left Futures: Voters simply remain indifferent to the slash and burn policy being implemented by this Tory led Coalition Government within which their Lib-Dem partners appear to be mere spectators. Labour needs to convince the electorate that while the short term policy would require some spending in order to stimulate the economy, the long term gain would be that only a vibrant economy coupled with restrained austerity will finally pay the dividend on the county’s deficit.

The Jobbing Doctor: Criminal?

The Jobbing Doctor: Criminal?: A society is judged by how the most vulnerable are dealt with, and the current state in Britain is plumbing new depths of savagery towards the ill and poor.

Two patients have been wrecked yesterday, and I will see more next week.

I write down their experiences in the notes.

Meanwhile, middle-class Britain blithely sails on, certain that the "scroungers" are being dealt with.

They don't know the half of it.

Thursday, 2 August 2012

Pacing for chronic fatigue syndrome ‘not cost-effective’

Pacing for chronic fatigue syndrome ‘not cost-effective’ - Health News - NHS Choices: Rather than being effective, graded exercise actually worsens the illness, often permanently - exercise intolerance is a diagnostic symptom of M.E. Cognitive behaviour therapy, insultingly designed to help sufferers of an illness classified by the W.H.O. as physical to overcome their supposed 'abnormal illness beliefs' makes no difference at all.

When Are You Going To Stand Up For Our Sick And Disabled, Mr. Miliband?

When Are You Going To Stand Up For Our Sick And Disabled, Mr. Miliband?: I believe what we need in this country is more compassion, not less. The WCA is unacceptable for a progressive country and it is a clear failure. The money spent on the appeals process confirms that, quite aside from the human misery it costs.

A sick joke � UK Gazetteer

A sick joke � UK Gazetteer: In a move that is only going to anger many the government seems determined to pursue its policy of terrorising the disabled and sick while ignoring the banks and tax avoidance schemes recent news has brought to light. As usual this government is not only following double standards but it is chasing the defenceless while the guilty are rewarded in no uncertain terms.

Where's the Benefit?: #ATOS Contracts: Sick Joke, Or Rewarding Incompetence?

Where's the Benefit?: #ATOS Contracts: Sick Joke, Or Rewarding Incompetence?: It seems the reward for all the heartache and suffering that ATOS have inflicted on disabled people over the past few years, the bonus for getting one assessment in six so wrong it is overturned in front of a judge, for wasting �50m/year of taxpayer’s money in those appeal tribunals, is the right to inflict precisely the same kind of abuse on millions of disabled recipients of Disability Living Allowance as the government axes that successful benefit in order to exclude 20 to 25% of current recipients.

Reduced spending power is what could finish this government

Reduced spending power is what could finish this government | Left Futures: For the government the lights are flashing red, even more than before. Where is the demand to come from to deliver the growth so avidly sought after? Not exports when the downturn is virtually global. Not investment when companies are sitting on an unprecedented �750bn cash stockpile, but refusing to invest for lack of demand. And not now consumer spending when it is falling at historically one of the fastest rates ever.

Charities seek safeguards for disabled people following DWP decision to award new assessment contract to ATOS

Charities seek safeguards for disabled people following DWP decision to award new assessment contract to ATOS | The Hardest Hit: The Disability Benefits Consortium, a coalition of charities representing hundreds of thousands of disabled people, is concerned that many disabled people will be stressed and fearful of the new process – as well as mistrustful given the overarching policy aim of reducing expenditure.

Atos wins �400m deals to carry out disability benefit tests

Atos wins �400m deals to carry out disability benefit tests | Society | guardian.co.uk: The Department for Work and Pensions (DWP) announced the award of three contracts in England and Wales, with Atos unexpectedly winning the lion's share of the work.

The nasty department: DWP threaten to take disabled children away from parents

The nasty department: DWP threaten to take disabled children away from parents | Left Foot Forward: The opening paragraph states that they, the DWP, “are writing to review your role. We want to ensure the appointeeship is working well and that there are no issues we need to address”. As far as we know, this disgraceful missive was sent out to the parent or guardian of every child in receipt of DLA when renewing their claim.

Breaking News : Possible New WCA Descriptors

Diary of a Benefit Scrounger: Breaking News : Possible New WCA Descriptors: What does this mean? Well, it means that the Government wrote criteria that were so tough, so detached from reality, so blatantly designed to ensure that seriously ill or disabled people failed, it didn't matter who did the assessments - Atos or Coco the Clown - the results would be the same. (Some might argue the two examples are the same....)

Genealogists Confirm David Cameron Is A Bastard

Genealogists Confirm David Cameron Is A Bastard � Pride's Purge: Extensive research by expert genealogists at Debratt’s Peerage has revealed the Prime Minister, David Cameron, is directly descended from Lady Elizabeth FitzClarence, the illegitimate daughter of William IV, thereby officially proving what many have suspected for a long time that the Prime Minister comes from a long line of bastards.

Diary of a Benefit Scrounger: Who is to "blame" for the WCA?

Diary of a Benefit Scrounger: Who is to "blame" for the WCA?: But today, in 2012, who is to blame for the WCA? Who is to blame for the descriptors? Who refuses to change them. Who often hold Atos back from making the changes we need to see? For there being too few recorders in centres, for many remaining inaccessible? Who has the power to change it, that's the point.

Wednesday, 1 August 2012

Join The Atos Games! | Left Futures

Join The Atos Games! | Left Futures: On your marks, get set… for a week of Paralympic fun and games against Atos! From Monday 27 to Friday 31 August, join Disabled People Against Cuts for The Atos Games – five days of action against a company that’s sponsoring the Paralympics but wrecking disabled people’s lives.

Worked To Death: 32 Disability Benefit Claimants Die After Being Forced Into Jobs

Worked To Death: 32 Disability Benefit Claimants Die After Being Forced Into Jobs: Labour’s shadow energy minister Tom Greatrex said: “How can Atos get things so wrong that 32 people they believe are fit for work die within weeks of their �capability assessment?

10 Painful Lessons | How To Cope With Pain Blog

10 Painful Lessons | How To Cope With Pain Blog: Living with constant pain is an educational experience I could have done without… That doesn’t mean that the things I’ve learned from it aren’t useful, or that I’d rather not know them. It’s just that it would have been really nice to learn all this stuff some other way!

Newly Diagnosed with ME/CFS? Four Things Not to Learn the Hard way

Newly Diagnosed with ME/CFS? Four Things Not to Learn the Hard way: Falling ill with ME/CFS is a real down-the-rabbit hole experience. Suddenly, your body, which has always, up to that point, had enough energy to get you through the day, allowing you to do whatever needs doing, just - doesn’t. It’s as if you’ve always made a certain amount of money and all of a sudden you’ve taken a 50% pay cut. In order to maintain a positive balance in your bank account, you must start budgeting differently; your priorities have to change.

Grayling ‘misled parliament’ over censored disability benefits video

Grayling ‘misled parliament’ over censored disability benefits video | Political Scrapbook: Employment minister Chris Grayling has been accused of misleading parliament, after a written answer tabled in the Commons appeared to contradict correspondence from his private office about the censorship of a government publicity video on the appeals process for disability benefits.
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