Sunday, 13 February 2011

Links of Interest (weekly)

  • "DLA is by the DWP's own admission at least 20% under claimed and maybe as much as 40%. It is subject to a misinformation campaign by the Condems and their allies in the gutter press. Its abolition and replacement is nothing but a cost cutting exercise by the Condems and will cause huge suffering ... "

    tags: uk benefits cosmos

  • "In fact, as the DWP’s press release shows, the reassessment found that 71 per cent of claimants were not ‘fit for work’. How did the Telegraph, Mail, Sun and Express get it so wrong – and get it wrong in exactly the same way?"

    tags: uk benefits politics cosmos

  • "One of the most pervasive symptoms of fibromyalgia and chronic fatigue syndrome is lack of energy. Sometimes it seems like no matter what I do, I just don't have the energy to do what I need to."

    tags: fibromyalgia me_cfs cosmos

  • "For the purpose of DLA, however, the current law means that a claimant cannot be eligible for a higher rate of mobility unless his/her disability is considered "physical". For this purpose, CFS/ME is "physical"."

    tags: uk benefits cosmos

  • "The DWP secretary Iain Duncan Smith finally admitted today that his department was “wagging their finger” and “stigmatising” people on benefits as committing fraud despite their innocence."

    tags: uk benefits cosmos

  • "We need a patient-centred medical system that isn't tainted by the profit motive. We need to combat the misconceptions around M.E. which have already been spread by those ignorant of it, or who have an interest in perpetuating the "CFS" invented syndrome. But in order to get there, we need to mobilise the community and dispel the myths surrounding Myalgic Encephalomyelitis."

    tags: me_cfs cosmos

  • "Sadly, the word "adjust" too often means "resign," "settle for less than a desirable existence," and "surrender." At its worst, "adjust" is just another way of saying "You are now a nonperson without the right to experience strong passions, desires, or fierce and unyielding hope." All the anger and blame inherent in this attitude is misdirected: the patient rather than the disease becomes the target."

    tags: me_cfs cosmos

  • "... some of my symptoms are the same as you’d get with cancer and I can’t help myself thinking that at least if it was cancer at least I’d have less time to put up with all this."

    tags: fibromyalgia cosmos

  • "It's like an attack on all fronts. How are we supposed to deal with all of this? And how can we not be angry about it? "

    tags: uk benefits health politics cosmos

  • People with Severe ME experience complex, debilitating cognitive and processing issues. It can very difficult indeed researching or understanding the issues. To help, I have triedto gather together , some relevant background information: what are the proposed reforms ? What are their implications ?

    tags: me_cfs uk benefits cosmos

  • "... does it help to move to a warmer climate?"

    Yes, absolutely. From my 16 years in Tenerife, I know that a warmer and drier climate reduces all symptoms.

    tags: fibromyalgia me_cfs cosmos

  • "Whilst under the cover of ‘the big society,' the Tory led coalition is withdrawing adequate funding to the welfare state in an attempt to turn the clock back to a 19th century type provision of services. Behind the scenes in exchange for the banks accepting a small amount of window dressing over bonuses, it has been engaged in talks about changing the tax laws which will legalize the UK as a tax haven for the multi nationals and financial institutions, including the banks whose reckless behavior caused the economic crash. To add insult to injury, whilst doing this Cameron was telling PAYE taxpayers it is not possible to give them a tax break."

    tags: uk politics cosmos

  • "A fair society sees each of its members as a full citizen – a unique person with a life of their own. A fair society is organised to support everyone to live a full life that has meaning and respect."

    tags: uk cosmos

  • "The Campaign for a Fairer Society says it "wants power and control to shift from government to citizens, families and communities. But we don't want the government's 'Big Society' if that means a loss of basic human rights and unfair cuts focused on the most vulnerable"."

    tags: uk politics cosmos

  • "But to have a ME/CFS crash is not just painful; it’s a bad idea. Crashes are not a neutral occurrence; they make you worse temporarily at least, but sometimes there’s permanent function loss. too. "

    tags: me_cfs cosmos

  • "ME/chronic fatigue syndrome (ME/CFS) is a chronic state of profound exhaustion, often accompanied by pain, sleep problems and cognitive dysfunction, and it is made worse by exercise. In my local health authority area, individuals with a long-term fatigue problem used to be sent to the immunology department at the regional hospital for diagnosis and treatment, but now they are referred to a psychiatrist. This is a growing trend throughout the UK. These days, getting a diagnosis of chronic fatigue is tantamount to getting a psychiatric diagnosis. This is good for creating work for psychiatrists, but is it good for the individuals concerned? If their condition is a physical illness, they will not receive suitable treatment and so will not make a full recovery."

    tags: me_cfs cosmos uk health

  • "Department of Health has confirmed that it works to the ICD 10.G93.3 definition of ME/chronic fatigue syndrome, Ministers are providing false information to MPs by advising that it is the WHO itself that has reclassified ME as a mental disorder. That is untrue. The WHO has confirmed in writing that the WHO Guide to Mental Health in Primary Care does not carry WHO approval and that it is "at variance" with the WHO's position on ME/CFS. The WHO has never classified ME as a psychiatric disorder and has confirmed that it has no plans whatsoever to do so. "

    tags: me_cfs cosmos

  • "“The Lads have this strange notion that if they are being offensive it bestows on them a kind of anti-establishment aura of coolness; in fact, it is uber-conservative [which isn't cool)."

    tags: cosmos

  • "Overall, it would appear that patients who fare better have a classic “viral” provoke history - i.e., they had a case of a “viral-like” illness, never got better, and over time keep going downhill. Duration of symptoms may be six months or 20 years. "

    tags: me_cfs cosmos

  • "How has this happened? That we are under such scrutiny, and in a state of such terror, and so disregarded by the government, as well as the opposing party, that millions of us are at risk of homelessness and destitution, as some kind of punishment for being ill."

    tags: cosmos uk benefits

Posted from Diigo. The rest of my favorite links are here.

Pamela is a former accountant, recovering journalist and international cat herder, disabled and chronically sick with Myalgic Encephalomyelitis, Fibromyalgia and Cervical spondylosis, fluent in three languages; English, Spanish and Rubbish. Mostly writes in the latter. She likes Genealogy, Model Railways and Cats.

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