Tuesday, 30 November 2010

Freezing weather

No matter where you are in the world, you can’t fail to have noticed that poor old Britain has, yet again, been taken by complete surprise by some snow and freezing weather that’s predicted to be going 'to grip UK for weeks'. Brrrr …

100_0929Just how cold is it?

Well especially for all my friends down in the sub-tropics who will probably have a right laugh at it, I took this photo when I came back from an outing on Saturday afternoon, while I was still wrapped in 10+ layers of clothes.

We haven’t even got any snow – that stuck – in this area, but it’s still bitingly cold out and having been out on a previous day without face protection, I knew I had to guard against the cold that was burning and drying my nose and lips. I already felt like I was fraying at the edges and might develop cold sores.

As a side issue, what’s the difference between me wrapping up in a beanie hat and a fleece neck-warmer and a Muslim woman wearing a burka? Frankly, I can’t see any difference at all, but I can’t imagine anyone suddenly getting their panties in a bunch over me insulating against the weather.

Anyway, the reason I decided to go out at all was because I’d spent several days indoors at the beginning of the week, trying to recover from a pretty bad fibro flare. The lack of movement, however, was creating other problems, namely, what we shall call politely, sluggishness in the bum department.

And I really didn’t want to spend days bloated, nauseous, with an almighty headache and increased aches and stiffness from the retained toxins (as always happens), so off I went for a walk to, er, try to get things moving.

I didn’t really go far or stay out long, because the weight of the extra clothing was utterly exhausting that I felt like I was dragging a ton weight with me.

Then there was the other problem that the cold made me want to pee, but there was no way I could undress again to go, whilst I was out.

Despite being wrapped like a demented mummy, I felt utterly miserably cold and the cold made my thigh muscles tighten into solid knots, which in turn has made my knees hurt so much I just want to cry and cut my legs off.

From walking, the pain in my hip has gone off the Richter scale again.

But the moment I went into a shop, I began sweating so profusely that I was soon soaked from head to foot with my wet clothes clinging to my body.

Then I had to go back outside again, of course, so my soaked clothes got cold and I had to walk home like that, wet and frozen to the bone. That would be bloody torture for anyone. With fibromyalgia it’s beyond description.

It also just isn’t possible for me to walk fast enough to stay warm, without surpassing my abilities and going into the exhaustion zone with my ME/CFS.

The levels of stiffness and pain this cold and damp has left me with – that isn’t improving because of the ridiculously low temperature in the house – are, yet again, beyond excruciating and disturbing my sleep. I’ve tried taking herbal stuff to help me sleep, but even when I do sleep, I’m not refreshed.

Last week I took some notes in order to type a couple of letters and my shoulder froze from doing that and that hasn’t yet unfrozen or recovered.

My joints are all now cracking – both audibly and painfully - at the smallest movement. My wrists hurt so much I’m now having trouble positioning myself to sit up in bed. My neck hurts so much I have to support it: I can’t hold my head up without. And I don’t even have the energy to sit up without support.

So that’s it, until the weather improves (in about May), I don’t have an option other than to avoid going out unless it’s pretty essential. Some life eh?

The Red Lion


One of my former models, as seen on one of the layouts at the New Forest Model Railway Society Open Day in Brockenhurst on Sunday. Well, better there than still gathering dust in the loft. Was fun to see them again.

Saturday, 27 November 2010

Buy Nothing Day


Saturday November 27th 2010 is Buy Nothing Day (UK). It's a day where you challenge yourself, your family and friends to switch off from shopping and tune into life. The rules are simple, for 24 hours you will detox from shopping and anyone can take part provided they spend a day without spending!

I fully intend to non-participate.

No purchase necessary and, best of all, it’s FREE!

Buy Nothing Day

In similar vein, while you’re thinking about this issue, make a commitment with yourself to aim to Buy Less Crap.

Now I feel a bit guilty because I’ve been buying a lot of stuff this year, but I try to remind myself that this is because I do really need things that will make life more manageable here with my increased disabilities and difficulties.

It’s also because I returned to the UK 2 years ago with just one suitcase and 4 boxes, so I genuinely need to rebuild a life and a wardrobe – not to mention that the weather dictates the need for different weight clothes for seasons, etc.

What I’ve tried hard to avoid is getting back into the nasty habit of treating retail as therapy. I understand why: it’s bloody impossible to get any other type of therapy in this country, but crap and shiny things don’t make it better.

And one of the prime things to avoid in the run up to the Capitalist Holiday formerly known as Christmas is all the cheap shit in temporary shops (or cheap shit anywhere, for that matter, though it’s hard to avoid.) That article may be a spoof, but it’s definitely one here there’s a lot of truth in with the jest.

Tell me, who buys all those tacky ‘gift sets’? You know the ones: they contain toilet water that smells like it genuinely came from a toilet! And please, nobody, with any taste and dignity, ever needs a fucking fleece blanket with sleeves!

Yep, you’re definitely better off buying nothing.

Sunday, 21 November 2010

Goldberg's depression test

“You have reached level 83 on the Goldberg scale.

54+ Severe depression

You have the symptoms of severe depression.”

Heck, they don’t say!

Goldberg's depression test

Saturday, 20 November 2010

Spain to guarantee dignity in death

imageIn March of next year, the Spanish Government plans to approve a law to regulate “palliative care and dignity in death”, announces vice-president, Alfredo Pérez Rubalcaba, who was quick to deny that this is legislation covering euthanasia.

According to Pérez Rubalcaba, the law aims to guarantee the rights of patients, their families and doctors and to “a dignified death”, which is the same as saying, “die painlessly”.

He added that this law is to address situations in which it’s known that the terminally ill patient is going to die and will otherwise suffer. It is only for when the case is clinically hopeless and the only expectation ahead of them is a nightmare before dying.

For these cases, “medicine has mechanisms that allow death to occur with dignity, that is to say, without suffering”, for both patients and families.

The Minister underlined that the law will be similar to that in other European countries and cited French law as an excellent example, while reiterating that the current proposal has nothing whatsoever to do with euthanasia. “Euthanasia is a decision that anyone can make for their own reasons, because they are ill and wish to die”, he insisted.

El Gobierno regulará por ley los cuidados paliativos y la muerte digna

Of Gods and Men

sin título.2010-11-18-09-53-53-127.jpg

"Human beings can live without gods, but the gods owe their lives to human beings. That is to say, they're an imaginary extension to reality; the result of dissatisfaction." - Luís García Montero.

Translated from liferfe Photo: By Mataparda (Jose Mesa)


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