CHAOSTOCOSMOS

Tuesday, 9 February 2010

Tuesday, February 9th, 2010

The last few days, after going out (to my assessment appointment at the Pain Unit in Poole) on Friday, I've been suffering the usual level of post-exertional maliase, sore throat, swollen glands, feverishness, aches and pains.

On top of that, now the temperature has dropped again, the pain in my hip has become excruciating to the point that I just cannot get into any position in which it is comfortable for more than a couple of minutes or that allows me to properly think and function.

The exercises that the physiotherapist gave me to do last week (my appointment was on Wednesday), specifically for this hip problem, have served only to increase the pain 10 fold too. The sideways movement more than the other two. I shall persevere as it may help with diagnosis, but as we discussed at the appointment, it seems to indicate that the problem cannot be sciatica and is thus yet another part of the fibromyalgia. That also means it isn't treatable.

The only relief, as I've constantly maintained, is to get back to a warmer, drier climate. This pain, which I have 24/7/365 here, I only felt badly once every few months or so when there was really bad weather in Tenerife, otherwise it simply did not bother me at all. Now I'm permanently stuck with it and most of the time it's unbearable.

Now the rest of my joints - simply all of them, from knees, shoulders, elbows, ankles, wrists and every single one in my hands and feet - have come out in sympathy again and are painfully popping, clicking and banging away every time I move, stretch, etc.

Medical advice is that one should not deliberately make joints click, because the more you pop your joints the more you are introducing laxity and potential for injury, so it can make the situation worse, yet, I cannot keep them still, because it's an almost involuntary action to try to alliviate the pain and stiffening when they feel as though they are ceasing and swelling up. It's another no-win. It's another symptom I simply had never had in Tenerife.

This is not a joint problem due to lack of lubrication, so drugs, oils and supplements are not going to be much, if any, help. It requires exercise to strenghten them. And exercise is good for fibromyalgia, but it must be measured and balanced very, very carefully indeed so as not to cause further exhaustion or permanent damage with ME.

How I'm affected undoubtedly has to do with humidity and barometric pressure and has absolutely nothing to do with how cold I feel - often I can be sweating from head to foot with hot flushes - and putting on extra clothing or blankets only adds to the pain and does not help, but if the temperature of my environment drops below 20 degrees centigrade, then my pain elevates in the same way as it would if someone were to beat me from head to foot with a baseball bat.

Add to that today that I'm yawning, can hardly keep awake and can hardly sit up, because I am so exhausted - yet, I've had several nights of fairly decent, uninterrupted sleep - something almost unheard of. It makes no sense.

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