CHAOSTOCOSMOS

Wednesday, 17 February 2010

Jailbreak? Please?

image By Rosemary Lee

Sometimes you feel like you're a prisoner in your own body. You don't know where the pain is originating from. You can't pinpoint it. It is always there.

Some days are better than others. The trigger points are so tender to the touch. I would have never believed it. Everything hurts to be touched. I feel like there is an extreme amount of pressure when I'm hardly being touched at all and ALL of them hurt.

I guess my central nervous system is on hyper-drive. Great. Just one more thing that's haywire. I can handle the dull ache. Pain medication seems to take the edge off that. It's the migrating voodoo pain that jumps up and slaps you in the face that I find so life altering. You just start to act "normal" (which I've never been) and the pain decides you need a gentle reminder of what your new life is to be. This I find hard to accept.

What I find fascinating is that accident or trauma can trigger this disease. This makes sense, at least in my case. I could handle my back pain before the crash. I always knew that once or twice a year my back would twinge and I'd be laid up a week. No problem. Since this accident a year and a half ago, something changed. My work life and personal life could no longer be "handled." I've felt different and everything has fallen apart.

The brain fog, the constant pain makes working with contracts impossible. I have to read and re-read. I forget things and that is not a real impressive attribute for a sales agent to have. It's the feeling of always being off balance. It's trying to smile so no one knows that you're ready to scream from the pain. It's always wanting to be normal when you're feeling anything but. This is already an invisible disease and to constantly make explanations about how you feel is so draining. Then to top it all off you constantly hear, "well I'm tired too," or "just get up and move around and you'll feel better."

The problem is that the domino was tripped when I got hit and NOTHING has been the same since. I've spent fortunes on doctors and tests and tests and more tests. The last round of blood work clocked in at over $6000.00. I can't continue like this and wait for a group of insurance doctors to decide whether I was "really" disabled while working at my former company. Oh yes, I love watching my career go down the toilet along with any money that I had left after all these months not working. Yep, it's just all fun and games.

I'm at a crossroads and I guess I'll find out which way I have to go.

I've never been good at directions.

Rosemary Lee has been a Las Vegas real estate broker and new home sales agent for the last 23 years. Recently diagnosed with Fibromyalgia she has worked on support and help with humor for those suffering with this neuroendrocrine immune disorder along with her views on life from her blog. http://rosemaryl.blogspot.com

Pamela is a former accountant, recovering journalist and international cat herder, disabled and chronically sick with Myalgic Encephalomyelitis, Fibromyalgia and Cervical spondylosis, fluent in three languages; English, Spanish and Rubbish. Mostly writes in the latter. She likes Genealogy, Model Railways and Cats.

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